Monthly Archives: August 2020

Loneliness Contributed to Dad’s Death

This story by Rachel Chason of The Washington Post summarizes the heartbreaking reality that elderly people are dying of loneliness in care facilities. The COVID Pandemic has meant quarantines prevent family members from visiting. Of course, we all understand the reasons for taking such precautions, but that doesn’t make it any less heartbreaking. We witnessed a rapid decline in my 82-year-old Dad’s cognitive abilities and physical health once family visits were no longer allowed.  While he didn’t die of COVID, it was certainly a big contributing factor.

Dad’s Decline

During the eight weeks between March 6th and May 10th when he died, Dad became unrecognizable. Social workers are typically the conduit between families and doctors allowing busy medical professionals to focus on resident care. But during COVID, social workers at my Dad’s facility were deemed non-essential and began working from home. This meant social workers weren’t laying eyes on patients making them less able to respond to our questions about how residents were faring. Family members were desperate to hear details of Dad’s days and frustrated when he stopped answering his phone. For some time, he would answer but it sounded like he had the phone upside down. We could hear him saying hello, but he couldn’t hear me shouting back “hi Dad, it’s Trish! How are you?!?!”. In frustration he would hang up. His voice sounded weaker and weaker as time passed. If we did happen to catch him by phone, he had little to say reporting “everything is the same”. Eventually, he stopped answering all together.

Video Chats

As a stop-gap measure, the facility started to arrange video chats so family members could see their loved ones and residents would have assistance with the technology. A nurse would provide me with a secure link and once connected, the nurse walked an iPad into Dad’s room. Most times he would stare blankly at the screen and often nod off. Nurses had to do a lot of prodding to help him understand what was happening. Calls were usually only minutes long and I’d walk away with a heavy heart because of how unlike himself he was. He was losing weight and his face was getting thinner.  As a lung cancer survivor, his struggle to breath was getting more pronounced. Even speaking would take his breath away. This was such a sad time.

I Want To Go Home

In early April when the nurse was connecting me with Dad for a video chat, she warned that he was agitated and had been asking to go home. Sure enough, he told me the same. I’m not even sure what I said in response. This request was both confusing and heartbreaking. Did he understand that the pandemic was preventing us from visiting him? Was he saying he was lonely? Or was he saying he wanted to go home to die?

My siblings and I met with our social worker to discuss how seriously we should take this request. Apparently it’s not unusual to hear such requests from residents. But under COVID circumstances, it was heart wrenching because there was little we could do to comfort him. We knew Dad was declining, and his social worker assured us that they could administer palliative care when it was time.

We explored the option of taking Dad home and having hospice care come in to administer treatment. Unfortunately, due to demand and their strained resources due to COVID, we could only expect visits from hospice nurses 2 times per week. The rest of his care would be up to us. They advised he would really be better off where he was.

Video Message

Since communication with him was so difficult, Dad’s social worker suggested that we try sending a video so they could play it for him when he was most lucid. The video below is one that I made a few days before he died. I was trying to make sure he knew that we weren’t deliberately neglecting him. We were thinking of him and trying to stay safe while struggling with COVID on the outside too. I’m told that nurses played it for him several times.

End-of-Life Visit

Palliative care began in mid-April on an as-needed basis. Gradually his dosage became more regular as he struggled to breathe making him more anxious. I got a call on May 7th that an end of life visit was being granted and that I should arrange to get to New York soon. I left the next morning and was able to see Dad for two hours on May 8th. I believe he knew that my siblings and I were there, but he also seemed like he thought it was a dream. We did lots of hand holding but had to stay masked. We did tell a few stories but he was very groggy. We said our goodbyes and watched him nod off to sleep.

Dad died on May 10th around 7PM. Unfortunately, he was alone. His social worker told me that nurses were checking on him every 15 – 30 minutes but he had passed by the time they made their final check. I can’t tell you how.

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FCPS Stressed Everyone Out Before Making the Right Choice

I appreciate the leadership of Fairfax County Public School Superintendent Brabrand, and the School Board as they made sure our kids will be safe when starting back in a few weeks. I am relieved that the decision was made to go back virtually. When FCPS student decisions were being registered back in July, my daughter chose the in-person option. Almost immediately, everyone in my family regretted that choice. I sent the following email to Dr. Brabrand asking him to reconsider providing kids with both an in-person and virtual option.

Dr. Brabrand,

My daughter will be a senior at Langley High School and we recently chose the “in-person” option as a way of helping her feel less isolated and knowing that FCPS would only make this option available if they felt it could be done safely. Making this decision was difficult for us and required a great leap of faith. However, recent news reports about rising COVID cases and decisions made by neighboring school districts to move toward a 100% virtual option have caused me to conclude that FCPS should reconsider taking on the challenge of providing two options for students.

Despite your best efforts to communicate with students and families, binding choices had to be submitted by July 15th with very little information about availability of classes and teachers. We chose with the expectation that our daughter would have access to the classes she needs to get into a competitive college. We believed that the necessary social distancing limitations would still make attending in person worth the risk. We considered her preference for in-person learning and desire to find some small way to engage with friends while salvaging her senior year. I’m concerned that binding student choices had to be made without knowing whether these expectations could be met making it likely that students will be disappointed with their decisions if you can’t deliver.

In watching your recent “Town Hall Meetings”, I also became concerned that we are asking too much of our administrators and teachers. For example, mask wearing has become extremely politicized. You said students will be required to wear masks but FCPS cannot suspend or expel students if they don’t. That puts administrators in the dangerous situation of managing an unmasked student whether it be by omission or with intent. I’d like to think everyone would choose to protect each other by wearing masks, but we have seen too many recent examples where people believe their individual rights are more important than the common good. I don’t think it’s fair to put our teachers and administrators in the middle of that.

My husband is also an FCPS high school teacher and he registered his virtual “preference” as requested. He is aware that ultimately his teaching situation will be dictated by student choices. He would have liked to register his preference based on which option allowed him to teach the subjects he prefers. But since that information wasn’t available until student choices could be tallied, he based his preference on his personal safety. I’m guessing many other teachers did the same which doesn’t give you a true reading of teacher preference. You should also know that stressed-out students were contacting him for guidance when making their July 15th binding back-to-school choice. Of course he had none to give.

I think taking the choice away from students and following neighboring school districts toward a 100% virtual class schedule is more manageable and realistic in an environment where things are too uncertain. Let’s divert the FCPS resources we would have spent on multiple class schedules toward helping kids in need of meals, devices, internet access and social services. Let’s tackle what we can safely manage and avoid overextending our limited resources. We can always reassess once we know more about cases and the availability of vaccines.

Thankfully, the FCPS School Board voted in July to resume school virtually. Articles like this one by Monica Hesse of The Washington Post provide a glimpse of what happened in North Paulding High School in Georgia when they went back to school this year. Their debacle around mask enforcement is exactly what I was referring to in the 3rd paragraph of my note to Dr. Brabrand. I share Monica’s perspective on the hypocrisy of allowing mask wearing to be a “personal choice”, yet dress codes are considered enforceable and punishable when kids don’t comply.

We weren’t ready go to back to school in-person for so many reasons. Eventually a new set of ground rules will need to be agreed upon in order for this to work. Vaccine or no vaccine. 

Related article: The impact of COVID on Teens

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